Supporting Families in Need
At The Harley Jae Trust, we offer grants to support families caring for children with life-limiting conditions. These grants help cover essential costs, improve quality of life, and allow families to focus on caring for their children.
Comfort Fund
The £250 ‘Comfort Fund’ is designed to provide immediate financial relief to families who are facing extended stays in the Paediatric Critical Care Unit (PCCU). When a child is admitted for six weeks or more, it can be an incredibly challenging time for families, both emotionally and financially. This fund is intended to help alleviate some of the unexpected expenses that arise during such prolonged hospital stays, such as meals, travel, and other day-to-day costs. By easing these financial burdens, the Comfort Fund allows families to focus more on being present with their child during this critical period, ensuring they can offer the emotional support that is so vital.
HJT Wish
The £500 ‘HJT Wish’ grant is a special fund aimed at helping families create positive memories after a difficult hospital stay. Following a child’s discharge from the PCCU after six weeks or more, families often need time to reconnect and heal. This grant can be used to fulfill a wish or create a meaningful experience for the family, such as a short holiday, a special day out, or any activity that brings joy and comfort. The HJT Wish is about giving families a chance to celebrate their resilience and spend quality time together in a way that’s meaningful to them.
Specialist Grants
The £1000 ‘Specialist Grant’ is available to families needing specialized equipment that is not covered by health or social care funding. Caring for a child with life-limiting conditions often requires specific medical or adaptive equipment to improve their quality of life, but not all of this equipment is eligible for public funding. The Specialist Grant helps bridge this gap, ensuring that families can access the tools and resources they need. Whether it’s a customized wheelchair, communication aids, or other essential devices, this grant empowers families to provide the best possible care for their child, without the financial strain.
Discretionary Fund
Our Discretionary funding provides flexible financial support for families facing unique or unforeseen challenges while caring for a child with life-limiting conditions. This fund can be used for various needs that may not fall under our other grants, such as unexpected travel costs for specialist appointments, emergency repairs at home, or any other critical expenses. The Discretionary Fund is there to offer peace of mind when unexpected financial burdens arise, allowing families to focus on what matters most—caring for their child. This fund will be considered by the Board dependant.
Get in touch to apply for a grant or fund
Get in touch with our team today to find out how we can support you.
Contact us*To ensure our grants reach those most in need, we have established specific eligibility criteria. Typically, families with a child under the age of 18 who has a diagnosed life-limiting condition are eligible to apply. Additional criteria may apply depending on the specific grant. Please refer to our detailed guidelines for more information.
Why our grants are so important
Unplanned expenses
Families often find themselves in hospital without the personal items, clothing or equipment they need to look after their child. Our comfort fund can help ease this for parents
Home Adaptations
Funds can be used to make essential home adaptations, such as installing ramps or modifying bathrooms, to improve accessibility for your child.
Specialised Equipment
Grants can be utilized to purchase specialised medical equipment, like wheelchairs or communication devices, to enhance your child's quality of life.
Travel and Accommodation
Grants are available to cover travel and accommodation costs for families traveling for essential medical treatments or consultations.
Want to know more?
Get in touch with our team today to find out how your family can benefit from a HJT grant.
Contact usGet answers to your questions
Frequently Asked Quesions
How do I apply for a grant?
To apply for a grant, you should speak to a healthcare professional on the PCCU who can make a referral on your behalf.
Who is eligible to apply for grants?
Grants are available to families with children under the age of 18 who have been admitted onto PCCU for 6-weeks or longer. Specific eligibility criteria may apply depending on the type of grant you are applying for.
Can I apply for multiple grants?
Yes, you can apply for more than one grant as long as you meet the eligibility criteria for each. Each application will be reviewed independently, so approval for one grant does not guarantee approval for another.
How long does it take to receive a grant?
We aim to process grant applications within two weeks however in most cases payments are made earlier. Processing times may vary based on the completeness of your application and the urgency of the request.
What types of expenses can grants cover?
Grants can cover a range of expenses, including emergency medical costs, home adaptations, specialised equipment or anything that eases the experience of the child whilst in hospital or when they get to return home.
What if I need help with the application?
If you need assistance with your application, our grants team is here to help. You can contact us via email or phone during office hours, and we'll guide you through the process.
